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Maria Kosberg posted an update: 2 weeks, 3 days ago · View
Hi,
Just wondering if there is a group that meet or anyone living in the northern suburbs of Melbourne. It would be nice to meet up with other parents who have a child with clubfoot.
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Maria Kosberg joined the group The Ilizarov technique 2 weeks, 3 days ago · View
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Maria Kosberg joined the group The Ponseti Method 2 weeks, 3 days ago · View
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Maria Kosberg joined the group Adults & Teens with Clubfeet 2 weeks, 3 days ago · View
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Wajid Mahmood posted an update: 1 month ago · View
Hi everyone, just joined in. Need to know the community and accordingly will share my daughter club foot on going treatment.
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Dwana Alayne Evans became a registered member 1 month ago · View
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Wajid Mahmood became a registered member 1 month ago · View
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Maria Kosberg became a registered member 2 months, 1 week ago · View
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well Rachel got her last set of cast off today. back to the shoes and bars
Hi Elizabeth,
Don’t worry about her not walking yet. Evan didn’t walk until 19months. Evan didn’t have the Ponseti method and didn’t have the bars… his feet would be much better if he did. Here is what I’ve read about the Ponseti brace….
“The real challenge of the Ponseti Method begins when casting ends. Children must wear a brace locking their feet in place 23 hours a day.
After three months, the time required begins to drop incrementally until age 4 or 5 when, according to Dr. Ponseti, the gene that causes club
feet is no longer active.”
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Angelique Berg became a registered member 1 year, 4 months ago · View
Angelique,
Thanks for joining the Clubfoot Club! It is wonderful that this support is becoming available. So many people who have been treated by posteromedial release surgery in the past have ongoing issues. These patients have no where to turn. The surgeon says there is nothing more surgically to be done and sends them away. I’ve taken my son (now 17) to a few other Doctors but no one knows what to say other than that he should make sure he chooses a career path where he won’t be on his feet all day.
The best support I’ve given to new parents is to point them to the Ponseti Checklist so they understand what the correct method of treatment should be.
It is good to know about your organization.
~ Ruth
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Kathy Trolley and Werner Meier are now friends 1 year, 5 months ago · View
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Kathy Trolley posted an update: 1 year, 5 months ago · View
thank you for allowing me to join! It will be nice to feel that I am not alone.
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Kathy Trolley became a registered member 1 year, 5 months ago · View
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Diana Johnson posted an update: 1 year, 5 months ago · View
just wondering how to use this website. Did anyone get my profile about my grandaughter nalaie? I wasnt sure if I did it right. I would like to talk others about their experience with the serial casting and ways to help her be more comfortable with the casting. If anyone reads this please tell me if you were able to view the profile and any other informaion. Thank you so much, this is all very new for my daughter.
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Diana Johnson became a registered member 1 year, 5 months ago · View
Hi Diana,
Welcome to the Clubfoot Club. Sorry I didn’t reply sooner I’m fighting a nasty cold. Yes just click on your profile and your story is there. Make sure you read the Ponseti Checklist to understand the proper treatment steps. My son had the wrong treatment, casts below knees and taking cast off the night before, etc.. he then had surgery. I really wish we had known about the Ponseti Method!
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