Clubfoot Community | Site Wide Activity http://clubfootclub.org/community/activity/feed Site Wide Activity Feed Fri, 01 May 2009 21:54:08 +0000 http://buddypress.org/?v=1.2.3 en http://clubfootclub.org/community/activity/p/1363/ <![CDATA[Maria Kosberg posted an update: Hi, Just wondering if there is a group that meet or anyone living in the [...]]]> http://clubfootclub.org/community/activity/p/1363/ Mon, 23 Jan 2012 02:35:11 +0000 Maria Kosberg posted an update: Hi,
Just wondering if there is a group that meet or anyone living in the northern suburbs of Melbourne. It would be nice to meet up with other parents who have a child with clubfoot.
Maria

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]]> http://clubfootclub.org/community/activity/p/1362/ <![CDATA[Maria Kosberg joined the group The Ilizarov technique]]> http://clubfootclub.org/community/activity/p/1362/ Mon, 23 Jan 2012 02:27:32 +0000 Maria Kosberg joined the group The Ilizarov technique

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]]> http://clubfootclub.org/community/activity/p/1361/ <![CDATA[Maria Kosberg joined the group The Ponseti Method]]> http://clubfootclub.org/community/activity/p/1361/ Mon, 23 Jan 2012 02:27:22 +0000 Maria Kosberg joined the group The Ponseti Method

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]]> http://clubfootclub.org/community/activity/p/1360/ <![CDATA[Maria Kosberg joined the group Adults & Teens with Clubfeet]]> http://clubfootclub.org/community/activity/p/1360/ Mon, 23 Jan 2012 02:27:17 +0000 Maria Kosberg joined the group Adults & Teens with Clubfeet

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]]> http://clubfootclub.org/community/activity/p/1358/ <![CDATA[Ruth Maude and Maria Kosberg are now friends]]> http://clubfootclub.org/community/activity/p/1358/ Mon, 23 Jan 2012 02:26:52 +0000 Ruth Maude and Maria Kosberg are now friends

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]]> http://clubfootclub.org/community/activity/p/1356/ <![CDATA[Wajid Mahmood posted an update: Hi everyone, just joined in. Need to know the community and accordingly will share my [...]]]> http://clubfootclub.org/community/activity/p/1356/ Mon, 09 Jan 2012 09:44:15 +0000 Wajid Mahmood posted an update: Hi everyone, just joined in. Need to know the community and accordingly will share my daughter club foot on going treatment.

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]]> http://clubfootclub.org/community/activity/p/1354/ <![CDATA[Ruth Maude and Wajid Mahmood are now friends]]> http://clubfootclub.org/community/activity/p/1354/ Mon, 09 Jan 2012 09:31:18 +0000 Ruth Maude and Wajid Mahmood are now friends

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]]> http://clubfootclub.org/community/activity/p/1352/ <![CDATA[Ruth Maude and Dwana Alayne Evans are now friends]]> http://clubfootclub.org/community/activity/p/1352/ Fri, 06 Jan 2012 20:06:18 +0000 Ruth Maude and Dwana Alayne Evans are now friends

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]]> http://clubfootclub.org/community/activity/p/1349/ <![CDATA[Dwana Alayne Evans became a registered member]]> http://clubfootclub.org/community/activity/p/1349/ Fri, 06 Jan 2012 16:36:24 +0000 Dwana Alayne Evans became a registered member

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]]> http://clubfootclub.org/community/activity/p/1348/ <![CDATA[Ivona became a registered member]]> http://clubfootclub.org/community/activity/p/1348/ Fri, 06 Jan 2012 16:36:16 +0000 Ivona became a registered member

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]]> http://clubfootclub.org/community/activity/p/1345/ <![CDATA[Wajid Mahmood became a registered member]]> http://clubfootclub.org/community/activity/p/1345/ Fri, 06 Jan 2012 16:35:41 +0000 Wajid Mahmood became a registered member

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]]> http://clubfootclub.org/community/activity/p/1343/ <![CDATA[Rebecca became a registered member]]> http://clubfootclub.org/community/activity/p/1343/ Fri, 06 Jan 2012 16:35:05 +0000 Rebecca became a registered member

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]]> http://clubfootclub.org/community/activity/p/1341/ <![CDATA[Jazmine Thomson became a registered member]]> http://clubfootclub.org/community/activity/p/1341/ Fri, 06 Jan 2012 16:34:21 +0000 Jazmine Thomson became a registered member

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]]> http://clubfootclub.org/community/activity/p/1328/ <![CDATA[Pipat became a registered member]]> http://clubfootclub.org/community/activity/p/1328/ Sun, 04 Dec 2011 14:53:03 +0000 Pipat became a registered member

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]]> http://clubfootclub.org/community/activity/p/1326/ <![CDATA[Maria Kosberg became a registered member]]> http://clubfootclub.org/community/activity/p/1326/ Tue, 29 Nov 2011 14:01:40 +0000 Maria Kosberg became a registered member

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]]> http://clubfootclub.org/community/activity/p/1322/ <![CDATA[Tim Rusk posted an update: One point I would like to make is, everyone's club foot is not the same [...]]]> http://clubfootclub.org/community/activity/p/1322/ Mon, 28 Nov 2011 13:18:43 +0000 Tim Rusk posted an update: One point I would like to make is, everyone's club foot is not the same severity as you know. Every one's experiences are different because of it. Every one's level of pain, structure and mobility of the foot is different. So, I am focusing on only my experiences which my or may not apply to you. I have a severely deformed and (corrected?) right club foot.

I am announcing this just to inform you of an added health problem I have and also I know some other people with club feet with the same problem. I was diagnosed with a sleep problem called Hypopnea. The lungs do not pull in enough air at night while sleeping. The doctor said I have a nerve mussel disorder in my lungs causing it. It was most likely the same nerve mussel as in my club foot. The diagnoses was made July 27, 1996. This was a major disorder that that affected me severely from birth. My symptoms were, headaches, dreaming of dying during the night, constantly day dreaming during the day, (day dreaming is level one of the four levels of sleep), lack of attention while sitting, poor memory, poor performance in school, always thinking I was dying in the morning. All symptoms are the results of lack of oxygen and lack of deep sleep.

Hypopnea can only be diagnosed by a Sleep doctor or sleep clinic your family doctor can not diagnose it. An over night sleep test must be done. Parents please watch for other nerve/mussel disorders in your child that may have a club foot, disorders that can not be seen. All those with similar systems please get to a sleep doctor or sleep clinic to be tested. I thought the way I felt was normal, it was my first day on a CPAP system that my life changed. It was the first time I ever woke up with the feeling I was going to live. Any questions my special e-mail address is scott.daryl123@gmail.com

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]]> http://clubfootclub.org/community/activity/p/1318/ <![CDATA[Jamie became a registered member]]> http://clubfootclub.org/community/activity/p/1318/ Fri, 18 Nov 2011 16:06:37 +0000 Jamie became a registered member

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]]> http://clubfootclub.org/community/activity/p/1317/ <![CDATA[RENEE became a registered member]]> http://clubfootclub.org/community/activity/p/1317/ Fri, 18 Nov 2011 16:05:56 +0000 RENEE became a registered member

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]]> http://clubfootclub.org/community/activity/p/1309/ <![CDATA[Mia Barry posted an update: Hi all! Just wanted to let you know of Clever Clothing Club, a new company [...]]]> http://clubfootclub.org/community/activity/p/1309/ Mon, 07 Nov 2011 13:00:51 +0000 Mia Barry posted an update: Hi all!
Just wanted to let you know of Clever Clothing Club, a new company that sells clothing specifically designed and sourced for babies with clubfoot. (www.cleverclothingclub.com)
Mia

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]]> http://clubfootclub.org/community/activity/p/1308/ <![CDATA[Tim Rusk became a registered member]]> http://clubfootclub.org/community/activity/p/1308/ Thu, 03 Nov 2011 13:14:54 +0000 Tim Rusk became a registered member

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